Porphyria News Columnist

• Prior experience with writing for an audience.
• At least three months’ direct experience with caring for someone with porphyria.
• Caregivers must be direct relatives, guardians, or spouses.
• Experience in being professionally edited for publication.
• Experienced in generating a blog or column.
• Participation in support groups, internet forums, or community groups relevant to porphyria.

Knowledge Required

• Fundamentals of how porphyria works.

• The content needs or wants of the porphyria community.
• A swift and independent learner of Internet technology.
• A creative mind capable of regularly generating unique content that appeals to target audiences.
• Time management.
• Advanced creative writing.
• Experience in using WordPress for content creation.
• Experience with the Slack communication app.
• Internet access and use.
• Native or fluent English writing and reading abilities.
• Bionews is a leading online health
• and research company with one purpose: to serve patients with a rare or chronic disease. We do this by connecting them with current
• and relevant news and information. This content is delivered regularly and provided by actual patients as well as professional journalists
• and experienced media executives. Our end customers are truly patients living with rare and chronic diseases. Visit www.bionews.com for more information.
• and champion the patient voice as the preeminent resource that engages
• and connects the global rare and chronic disease community.